Investigators plan to establish an in-depth understanding of knowledge and beliefs about palliative care in advanced Bladder Cancer patients and their caregivers, and to identify factors associated with positive and negative experiences with palliative care services among those who have received them.
| Overal Status | Start Date | Phase | Study Type |
|---|---|---|---|
| Recruiting | October 14, 2020 | Observational |
Primary Outcome 1 - Measure: Development of palliative care knowledge and beliefs
Primary Outcome 1 - Time Frame: 12 Months
Primary Outcome 2 - Measure: Proportion with accurate palliative care knowledge and beliefs
Primary Outcome 2 - Time Frame: 12 Months
Criteria:
Inclusion Criteria:
- Eligibility for both patient and caregiver participants will include:
- age ≥18 years
- able to speak and read English
- cognitively able to participate in study tasks
- willing to participate in surveys, semi-structured interviews, and/or focus groups
- able to participate in either a Zoom meeting or phone interview
- able to complete an emailed or paper survey
- Patient Participants: a diagnosis of muscle-invasive or locally advanced bladder
cancer (stages II-IV).
Exclusion Criteria:
- Patients and caregivers will be excluded if unable to provide verbal or written
consent
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Gender: All
Minimum Age: 18 Years
Maximum Age: N/A
Healthy Volunteers: Accepts Healthy Volunteers
Name: Scott Gilbert, MD
Role: Principal Investigator
Affiliation: Moffitt Cancer Center
Name: Lee Hugar, MD
Phone: 813-745-4673
Email: Lee.Hugar@moffitt.org
Link: Moffitt Cancer Center Clinical Trial Search
| Facility | Status | Contact |
|---|---|---|
| Moffitt Cancer Center Tampa, Florida 33612 United States |
Recruiting |
Lee Hugar, MD 813-745-4673 Lee.Hugar@moffitt.org |
