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BRIEF TITLE: Addressing Barriers to Palliative Care Use in Bladder Cancer Through Better Understanding of Knowledge and Belief Development

Addressing Barriers to Palliative Care Use in Bladder Cancer Through Better Understanding of Knowledge and Belief Development


  • Org Study ID: MCC-20809
  • Secondary ID:
  • NCT ID: NCT04598724
  • NCT Alias:
  • Sponsor: H. Lee Moffitt Cancer Center and Research Institute - Other
  • Source: H. Lee Moffitt Cancer Center and Research Institute

Brief Summary

Investigators plan to establish an in-depth understanding of knowledge and beliefs about palliative care in advanced Bladder Cancer patients and their caregivers, and to identify factors associated with positive and negative experiences with palliative care services among those who have received them.

Overal Status Start Date Phase Study Type
Recruiting October 14, 2020 Observational

Primary Outcomes:

Primary Outcome 1 - Measure: Development of palliative care knowledge and beliefs

Primary Outcome 1 - Time Frame: 12 Months

Primary Outcome 2 - Measure: Proportion with accurate palliative care knowledge and beliefs

Primary Outcome 2 - Time Frame: 12 Months

Condition:

  • Muscle-Invasive Bladder Carcinoma
  • Bladder Cancer Stage II
  • Bladder Cancer Stage III
  • Bladder Cancer Stage IV

Eligibility

Criteria:
Inclusion Criteria:

- Eligibility for both patient and caregiver participants will include:

- age ≥18 years

- able to speak and read English

- cognitively able to participate in study tasks

- willing to participate in surveys, semi-structured interviews, and/or focus groups

- able to participate in either a Zoom meeting or phone interview

- able to complete an emailed or paper survey

- Patient Participants: a diagnosis of muscle-invasive or locally advanced bladder
cancer (stages II-IV).

Exclusion Criteria:

- Patients and caregivers will be excluded if unable to provide verbal or written
consent
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Gender: All

Minimum Age: 18 Years

Maximum Age: N/A

Healthy Volunteers: Accepts Healthy Volunteers

Official Information

Name: Scott Gilbert, MD

Role: Principal Investigator

Affiliation: Moffitt Cancer Center

Overall Contact

Name: Lee Hugar, MD

Phone: 813-745-4673

Email: Lee.Hugar@moffitt.org

Link: Moffitt Cancer Center Clinical Trial Search

Location

Facility Status Contact
Moffitt Cancer Center
Tampa, Florida 33612
United States
Recruiting Lee Hugar, MD
813-745-4673
Lee.Hugar@moffitt.org